Monday, September 28, 2009

down time..


I went into Dr. Mahdavis office today to see him and also take my blood. My blood results were pretty good yet it is still a little low. I will get that checked again next Monday. I went over a couple things with my favorite doctor. I am taking my CT scan and also PET scan tomorrow. I will see him next Monday to go over all the results. I will have some anxiety wondering how this will all turn out. Also i saw Dr. Duma and i made an MRI appointment for my brain October 26th. He did say no matter how i am i will be able to fly. The bad news is that i can not drive until after the results of my brain. Wow! A month without driving myself any where or taking myself to the scans and other doctor appointments drives me crazy! I always did feel great being independent but not anymore.. BOO HOO! I am still getting pressure in my brain but feeling better. I will update you all when i get more information from the doctors and also let you know how i am feeling. Thanks for your support!! BELIEVE!

Wednesday, September 23, 2009

Relaxing

I had my white blood cell shots the past 2 days and also my blood taken yesterday. We figured that i did not need to get another shot today cause my white blood count was really high. It will end up going back down but i will check on it again Monday. I also will be seeing Dr. Mahdavi next Monday to go over it all. The past 2 days have been different for me. My whole body is feeling numb and sore. It is really hard to walk up and down the stairs too. I feel that i should do little exercises and stretches to help this problem. I cant not figure it out if it is from the chemo, shots , my brain damage or the muscle atrophy. The pain will go away soon too! The rest of the week i get to relax and work on my strength. My sister and i are going to head to Palm Springs for another relaxing weekend. I will update you all when i talk with my amazing doctor. Believe!!!

Monday, September 21, 2009

I am HOME!!


On Sunday my white counts were high enough to let me go home and my doctor was happy to discharge me. I was getting 2 shots a day to make my white count go up and it worked! I can sure feel this working by my bones and body are aching.Normally i end up being neutropenic and stuck in the hospital but that did not happen this round!! I am so happy to be home. I cried alot yesterday in the hospital because i just was realizing that i am not going back in again for any treatment. I am done with chemo... wow!! Also i love all the night and day nurses on that floor. They are so amazing, loving, and helpful. I will keep in touch with all of them. As much as i went through the past 6 months i was able to stay so strong and positive because of all the support i had from my doctors, nurses and you all!!

I now have a lot to do the next 3 weeks. This week i have to go into the cancer day hospital to get white blood cell shots for the next 3 days. Then i have to get my blood checked a couple times this week. Next week i will have an appointment to see Dr. Mahdavi to get orders for my scans which are brain mri, ct scan of chest abd and pelvic, pet scan, and muga scan. This is going to be fun to do them all next week!! After that i will finally see him to look over all the results. That will give me anxiety for sure. I also will be seeing Dr. Duma my brain doctor to figure out what is next. Once i see him i will let you all know what we decide. I am still taking Keppra which is anti seizure medication. I have never had one in my life but this is something that he wants me to take. Also when i am done with both doctor appointments and scans i will be going to U.C.L.A to see my two other brain and sarcoma doctors to get their opinion. Ahhhh this will all happen like i said in the next 3 weeks! As the days go by i will update you all with all my good news!!! Thanks again for all your support! I am so happy and impressed that i am staying strong!! Everyday i tear with joy! Can not believe i conquered this again!! Im a warrior!!! BELIEVE xoxo!

Thursday, September 17, 2009

Finished

So...Sunday night was the last drip of chemo. I am all done!!!! So far, counts are doing well and I am still taking steriods for the swelling & fluid in my brain. Now it is Thursday and I have been getting my shots for my white counts since Monday and today I am getting 2 units of blood. I am still a little spacey but feeling better every hour. Equalibrium seems to be getting better though it is still off. My doctor wants me to take a couple of weeks off and not drive. I know I am able to drive but I would rather not take that risk. I am hoping to get out this weekend. I just have to take it day to day to see how my counts are doing. Let's believe they will be going up fast so I can go home and realize I am done with all this treatment! I am so happy! Thanks for all your support.

Saturday, September 12, 2009

Round 6

I went back on Tuesday morning to Hoag for chemo. I started getting pressure headaches again the other day, so they took two more MRIs. Compared to the last ones from last week - it looks like the swelling has decreased a bit and stable. Saw Dr. Duma today and he is going to keep me on heavy steroids. Then once those steriods are done, we'll check to see if it is helping the swelling decrease. We are thinking not to do a crani to take the dead cancer mass out. The only surgery we may do is to drain the fluid from the brain, if necessary. That will be known in the next month because I need to build a strong immune system to do this. So today, I am on bag 5 of 5 of my last round of chemo!!! Feeling out of it and can't taste a thing. This is almost over! This is so exciting! Taking it hour to hour right now. Should be here for another week or so. I will try to update as the time goes by.....Believe.

Monday, September 7, 2009

Tomorrow

Tomorrow is the starting on the last chemo! Round 6! Wow can not believe i have already have taken all these drugs. I am excited to get this over and move on. Even though we are going to be watching the brain i am not worried about any issues that i may come up on. I will kick all the cancers butt and get back into normal life. For some reason i really would rather be working again soon. Though everyday i have been thinking about how many great travels and adventures i should go on. Life is too short and beautiful and i feel that i need to explore. Let my wings fly... I will try to have others update this as im inpatient. Please keep on praying and giving me positive energy. It all helps! Thanks again for your support!! Believe!!!!

Sunday, September 6, 2009

relaxing

So i am feeling well and dealing with these steroid effects.It seems to be working yet the feeling of being swollen, discombobulated and bright red is not too fun. i am in la quinta taking some relaxing energy time. it is beautiful here and i enjoy coming here as much as i can. i am mentally getting ready to finish round 6 of chemo on Tuesday. as soon as i get there i will be watched over to make sure the brain is functioning right. sorry if i have not called alot of people back and have not responded either i just have been over whelmed. i am staying positive and believe i am gonna kick all this cancers butt and experiences i go through. thanks for all your support  

Thursday, September 3, 2009

i am home

They let me out and i am home now. I talked to Dr. Duma and he is putting me on steroids to reduce the swelling and fluid. They are letting me come back next Tuesday for the last round of chemo for my lung. When i am done with this I will take a mri of my brain to see if the steroids worked. Dr. Duma really thinks that the mass is not cancer!! We dont know for sure or what is going to help but i believe i will be great! If it does not work we will drain the fluid out of my brain then. I have gone through alot but feeling ready to kick this cancers butt , drain the fluid and shrink the swelling! Thanks all for your support! I will update you all more very soon! Believe!

Wednesday, September 2, 2009

Major update!!

Yesterday I was having a great day until I kept on getting pressure headaches. I called Doctor Mahdavi and he told me to head to the Emergency Room. Once I got there I had an MRI on my brain. The MRI showed that the mass has grown and there is swelling. We don't know if the mass is cancer for sure or not. We do see the swelling from the brain is causing the brain to shift over towards the right side. So now I have been admitted back in the hospital. I am taking aggressive steroids because it helps the swelling in the brain go down. Also I am now taking my seizure meds again to prevent them from happening. I have never had one before but that's ok to take those meds. Now I am waiting for my brain doctor Dr. Duma to figure out what to do next. We are now going to ignore the lung treatment because the brain is more important!! As soon as I find out what Dr. Duma wants to do, I will let you all know. Believe...

Tuesday, September 1, 2009

Good doctor visit

So yesterday i went see Dr. Mahdavi. I had to get my blood taken to check all my counts also my magnesium and potassium. My white and red cells was looking good yet platelets are still a little low. Dr. said that i can just enjoy my week and check into Hoag next Tuesday. We were also talking about what we are going to do after round 6 the last chemo treatment!! He was saying that i will be getting a Ct scan and also a PET scan to see how it is looking. Yet from there if everything is looking good and stable he is going to put me on observation!! That is amazing!! No more chemo.. WOW! I believe i will be fine and just get checked after to make sure im clear... That was a good visit. So all week and i am keeping myself buy and relaxed. My hair is falling out right now bad. I woke up and on my pillow and face was my beautiful hair haha. So sad but i am ready to be a shiny and bald woman again. I will update you all as my relaxing week goes by. I am so happy and honored to who has been offering benefits and help for me. My words can not explain all my great feelings about that. I appreciate you all for your support!! Check out on my current events page in the next couple days to see whats new. Thanks again for your love and support! Believe