Thursday, November 26, 2009

short update

Happy Thanksgiving y'all! Heard from the doctor today and there was a fungal infection. So Monday i will have to see Dr. Fee,my infection disease doctor, to get the right antibiotics to help this infection. Also on Monday i see Dr. Mahdavi and Dr. Sharma to get checked on and figure out when i can start chemo. I will update when i do see them. I hope you all have a wonderful day with family and friends! I am thankful for all your love and support!!! Believe

Wednesday, November 25, 2009

Thanksgiving


I finished my broncoscopy Monday. It was not too bad. They put me out and the next thing i know i was back on the floor recovering. My chest was hurting so bad in the morning cause i was not able to drink or eat my halls cough drops! The doctor did give me pain killers when i left to see if they would help me at home. So far it has not helped and i am still waking up at night in pain. Ahhh what to do! i just need to start chemo to kill this stupid cancer so the pain and coughing will go away! Tomorrow is Thanksgiving and my doctor wants me to call him to give me results of the procedure. Wow what a day to be thankful of great news!! I believe with any news is great news cause i am still fighting and have wonderful family and friends who give me amazing support! Im thankful for that! Thank you all!!! I do Believe!!!! Update you as soon as i hear more news. Next doctors appointments are Monday.

Sunday, November 22, 2009

Tomorrow

I will be getting the broncoscopy in the afternoon. Hopefully it will still be an outpatient procedure. This weekend i went back to palm springs to get a relaxing get away. Though this weekend i have never been in so much pain ever in my life. My lungs,ribs and muscles in my back are really killing me. The feeling is so hard to explain but sharp and unbearable! I hope i will be able to start chemo the week after thanksgiving. Dr. Mahdavi has to ask Dr. Duma if it is ok to start chemo then. It will be 4 weeks since my brain surgery on Tuesday! Time flies by fast. I had to cancel my flights to Washington and England the other day. I was upset but do realize that my family in each place will be there when i am better. I just got to take care of business. I will let you know how it goes. Thanks for your support! Believe...

Thursday, November 19, 2009

patience is a virtue


Saw all the doctors this week. I need to get a bronchoscopy before i start treatment to make sure i don't have an infection and also to biopsy and send for genetic testing. I will find out tomorrow what day next week i will be getting this procedure done. I am starting chemo the week after the holiday. Still don't know if it is inpatient or outpatient. All i do know is that i have 1 new chemo and 1 old chemo cocktail. One of them is for 10 days infusions for over an hour and then i get 2 weeks off. The other chemo is in pill form which i have taken before. Will update you again when i have more information.

I got this tattoo last Saturday in Oakland.

Tuesday, November 17, 2009

HOME


I got home from my wonderful vacation on Sunday night. It was such a relaxing peaceful week! This week is back to stressful reality. I have all these doctor appointments and finally going to figure out what to do next. My cough is getting worse and the sharp pain in my lung is hurting more every night. I can not wait to start this treatment so this all goes away! Last night i was at Round Table Pizza, which is my favorite pizza, and had such a wonderful time. Thanks to all that came to support me and hope you enjoyed a great dinner. I will update you when i find out the next treatment. I go to UCLA tomorrow!!! Ahhhhh YEAH! I believe whatever they will give me will kick the cancers butt!! Thanks again for all your love and support! Do not know what i would do without you all! BELIEVE

Monday, November 9, 2009

Eureka!

I am now in Eureka. So far my little get away has been so wonderful! The Mattair's and i drove up to Santa Rosa on thursday morning. It is so beautiful up there and it is full into the fall season colors! Friday morning we headed up to Eureka. The weather has been beautiful up here all weekend. On saturday we went and saw a Humboldt state university football game because Summers bother Bubba is on the team. It was really hot and alot of fun! Took advantage of going on easy flat hikes this weekend. it feels so good to move around,smell fresh air,look at amazing redwood trees and be relaxed for the week! Have some other relaxing things coming up this week. I will be back at home on sunday. i really dont want to think about coming home yet! haha! it is too amazing here for me! i am doing ok. My hair is growing in fast over my incision already. The scar on my head is healing well. Though i am still coughing and getting sharp lung pain. I am enjoying every minute of my life till reality slaps me again when i get home. more time to relax and no time to waste.. Believe....

Wednesday, November 4, 2009

Not what you want to hear...

Went to the doctors today... It ends up that the mass in my lung is my cancer growing. Even though i did the 6 rounds of chemo it helped but it did not kill it.Also the swelling is not from the radiation. So in a couple weeks i will be going to UCLA to see my sarcoma doctor to get his opinion on what other regiment we are going to use to kill this stupid cancer! I knew this whole time that my cancer was still in my lung yet why did it have to grow. There is other chemo out there that is gonna kick its ass! Im gonna kick its ass! I am going to still relax up north till my next appointment nov 18th at UCLA. I need to escape and get fresh air before my next challenge. Also we can not even start any treatment until my brain heals too. So i got perfect timing right now. Even though this all may sound bad, it is not. It is not spreading and it is in the same place but just getting a little bigger. My luck always seems to work out. I BELIEVE! I AM OK. I AM A FIGHTER!!!! Thanks ya'll for your support! i will update as days go by....

Tuesday, November 3, 2009

Good Day!!

Today was a good morning! Got up early today to take my PET scan. I was very happy that it was easy for them to inject me! After i was done i realized that my wonderful 2 out of 3 doctors were there doing their procedures. Dr. Duma was there and looked at my incision which he is very proud of. It looks great and i was able to get my staples out!! He is amazing! My next MRI for my brain is not till the second week of December. For the 3rd time we discussed about me taking steroids before flying in a plane. haha! The same questions he has to hear from me...Poor guy! Yet he is so sweet! He blows my mind, brain literally.. Also Dr. Chen my radiation oncologist was there. We were talking about my chest and discussing how i still have chest pain and a cough. Steroids are suppose to help the pain and cough but to me it is still feeling the same. He said it may take 2-3 weeks to get better. I am just happy to know that the lung will heal itself. Tomorrow i will see Dr. Mahdavi to go over the PET scan. Dr. Chen was not able to go over more details with me cause the results could not even be seen yet. We will find out how the cancer is doing also in my lung. I am going to go to UCLA the first week of December to see how they feel about this and what to do next. AHH i finally get to relax!! Anxiety is going away fast! My strength is getting a little better everyday. I have never smiled so much than i have today! I will let you all know what the "man" has to say tomorrow.. I BELIEVE!!!!!!!!

Sunday, November 1, 2009

HOME

I am home. What a week of new experiences. Going through the surgery was not bad once again but the anxiety came on hard. I was in ICU for not even a full day and i could not sleep. Life is so short and precious it made me push harder to heal.There was so much going on around me in this unit and i was so happy to be transferred back onto my favorite 8th floor! I was able to calm down and finally get some healing sleep. I stoped taking diladid, which are strong pain killers, because i can only deal with my own pain. Being on those drugs erase all memory,pain and emotion. i don't like that. It is amazing that all my pressure headaches are gone! No pain or headaches! The only uncomfortable pain is the cuts and staples in my head. My face is really tight and pulled up. The steroids make me feel really sucked in and swollen. I will still be taking them till this Wednesday. Though the area is itchy and healing well. Everyday i am feeling a little better. When i was discharged, Dr. Duma came to tell me that it is NOT CANCER!! I knew it! I believed that it was just another test for me. This week on Wednesday i get the staples removed!! I cant wait! I also have another PET scan on Tuesday to check up on my lung.. Will they ever leave me alone. HAHA! Thank you all for your support! I am sorry if i don't make much sense but trying my hardest. I will update all the time. BELIEVE